Patient intelligence and artificial intelligence combine to bring rare disease breakthroughs
As Rare Disease day approaches, it seems timely to reflect on some of what's new in rare disease.
A new scientific paper published...
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Jane Barrett
Master Practitioner: Patient Insights at Cello Health Insight
United Kingdom
About Me
Jane has divided her 30 year career between healthcare and consumer research and is a qualified psychotherapist. She brings these skills to Cello Healthcare's patient and rare disease work and understands how to manage the emotional sensitivities of the area
Her experience encompasses over 80 diseases including childhood genetic conditions, cancers, respiratory and neurodegenerative illnesses.
As well as understanding the challenges faced in researching patients and caregivers, she also has wide experience with Patient Association Groups
Jane regularly publishes articles on topics about patient research and rare disease and has a particular interest in scoping the burden of disease, support needs and mapping the patient journey
She sits on the Cross Cello Rare Disease Hub and heads up The Patient Centre
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