Personalised medicine - creating a revolution in treating genetic conditions
When we consider personalised medicine, many people think of it as a futuristic principle, something that we are still working towards as...
Natasha Macgregor's Passles
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Social media is a powerful tool to take rare disease to the masses
When people consider a rare disease they think of cystic fibrosis, as it's taught in schools, or ALS thanks to Stephen Hawkins and the...
Another step forward in the management of DMD
Duchenne's Muscular Dystrophy is a genetic disorder, mainly affecting boys, and is one of the most common disorders causing progressive...
Undiagnosed is a diagnosis
Today is Undiagnosed Day, a yearly event which is used to raise awareness of the individuals and families who are affected by living with...
Will the new NHS app help to solve issues in Rare Disease?
Following a successful pilot of the NHS app in 34 registered GP practices, the government are now looking to implement this offering...
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