Certainly the last few years has seen many pharmaceutical companies focusing more on the patient and developing 'patient-centric' strategies. Some have done a fabulous job elevating the patient voice within their companies, where others are still struggling to determine exactly how best to action against newly understood patient realities and needs. BioMarin is certainly taking the voice of blood disorder patients seriously. BioMarin and Believe Limited have launched the "Breaking Through" performing arts initiative for high schoolers with bleeding disorders, creating a workshop where teens can learn techniques for pain management and providing an outlet for communication and self-expression through the arts.
Lynch credited BioMarin’s experience in rare disease and its thinking around the patient experience as the most important part of living with a rare disease as unique and fitting for the project.